For the love of GM3. What are some victories you guys are achieving with your munchkins?

Hi everyone diagnosed with GM3 deficiency. This group is for family members whose loved ones have GM3 synthase deficiency. Kendra Giacalone Gavin’s mum, created this support group so you know you are not alone on this jcurney. Please feel free to share your stories, tips, what has worked, what hasn’t and new ideas of treatment. I have a feeling we’ll all cry together so I want us to smile/laugh together too. And for sure cheer each other on. Kendra Giacalone wanted to let you know the IT team at UMass has started developing the fundraising website. -Hopefully, we will have this up and running soon- she said.